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CAC2 Childhood Cancer Community News Digest (March 31-April 6)

Assorted News from the Last Week:

A pan-Canadian team has developed a new way to quickly find personalized treatments for young cancer patients, by growing their tumors in chicken eggs and analyzing their proteins. The United States Food and Drug Administration (FDA) has granted Rare Pediatric Disease Designation for NEO100 (perillyl alcohol) in the treatment of pediatric-type diffuse high-grade gliomas. Adolescents and young adults (AYAs) (aged 13-39 years) represent a growing segment of the cancer population who face distinct challenges in receiving care, leading to adverse treatment experiences and stagnant survival outcomes. Preventable pediatric cancer mortality surges in areas of armed conflict, exceeding rates in non-conflict regions. Pediatric palliative care (PPC) is an essential component of holistic care for children with cancer, and this article explores the status, challenges, and future directions of PPC for children with cancer in Italy. The Global Platform for Access to Childhood Cancer Medicines: addressing inequities in childhood cancer care. (gated) Children with congenital heart disease (CHD) have increased risk of developing cancer. A Phase I clinical trial demonstrated that a targeted approach to treating diffuse intrinsic pontine glioma (DIPG)using a radiation-based direct drug delivery approach to treat and image DIPG is safe. Upcoming Webinars, Online Opportunities, and Meetings:
CAC2 will host a free public Webinar on April 17, 2025 noon-1:00 PM ET on The Role of AI from Diagnosis to Treatment for Childhood Cancer. Click here for more information and to register. AUDREY’S CHILDREN is the true story of Dr. Audrey Evans, a pioneering pediatric oncologist who developed the revolutionary staging system for treating Neuroblastoma and who co-founded the Ronald McDonald House. In theaters nationwide – March 28th! Click here for more information. The Coalition Against Childhood Cancer will hold its 2025 Annual Summit, hosted by Children’s National Hospital in Washington DC and presented by Day One Biopharmaceuticals. This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing efforts of our members who are working for a future without childhood cancers. June 15-17. Register here: CAC2 Annual Summit Registration Cheerful Hearts hosts online game time for children ages 6 through 14 years old every Sunday at 4:00 pm-4:30 EST. Click here for more information and to register.

Take Action:

The 2025 Evan Lindberg & Erik Ludwinski College Scholarship Program is open to high school seniors who are survivors of a high-risk cancer or in treatment for a high-risk malignancy. Students must be accepted into a 4-year undergraduate institution and demonstrate a need for financial assistance. For information and to apply. Four childhood cancer-related bills have been introduced in the first three months of this year. Read about them and encourage your Members of Congress to support them all.

CAC2 Innovation Council Recommendation: Social Genomic Mechanisms of Health Disparities among Adolescent and Young Adult (AYA) Survivors of Hodgkin and Non-Hodgkin Lymphoma

Overview of the Opportunity: The study seeks to understand more about how the world that teen and young adult lymphoma survivors live in affects the outcomes of their cancer treatment.

The Requester: Study team led by Dr. Brad Zebrack, University of Michigan, School of Social Work

The Type of Request: Information sharing about an adolescent and young adult survivor study of health disparities.

The Ask: Inform CAC2 Members about the study called Social Genomic Mechanisms of Health Disparities among Adolescent and Young Adult (AYA) Survivors of Hodgkin and Non-Hodgkin Lymphoma that is currently recruiting 18 – 39 year olds who have completed treatment for Hodgkin or Non-Hodgkin Lymphoma and are within 3 years since the end of treatment. Distribute the informational flyer within members’ networks.

Supporting Documentation:

The study has two primary goals:

  • Help develop approaches that improve the mental and physical quality of life for patients and survivors
  • Help create more effective treatment and better survivorship care for young adult cancer patients

Informational Flyer for distribution: http://www.cac2.org/wp-content/uploads/2025/03/Adolescent_Young_Adult_Survivor_Study.pdf

Website: https://aftercancergenomics.org

3-minute video explaining the study: https://www.youtube.com/watch?app=desktop&v=xDlnWKvtkuU&feature=youtu.be

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Vickie Buenger

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