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CAC2 Childhood Cancer Community News Digest (April 28-May 4)

Assorted News from the Last Week:

In CAC2’s April pop-up webinar, “Patient Advocacy, Non-Profit Foundations, and the Changing Landscape of Pediatric Cancer Funding,” our special guest, Dr. Kimryn Rathmell, shared compelling insights on the evolving pediatric cancer landscape and the role of advocates. A highly sensitive bone marrow test could double survival rates for some groups of younger adults with Acute Myeloid Leukaemia (AML) by helping doctors identify if they might relapse up to three months earlier. Experts call for research, improved care for Nigerian children with cancer. ‘Nerve-wracking:’ Childhood cancer clinical trials endangered by possible budget slashes. Black and Hispanic children with high-risk neuroblastoma have worse outcomes despite standardized treatment. Computational analysis clarifies cancer risk for families with genetic variants. Pediatric brain cancer researchers look at potential new treatments.

The impact of radiotherapy on survival outcomes in metastatic neuroblastoma a propensity score matched SEER database analysis.

AI-driven analysis of digital pathology images may improve pediatric sarcoma subtyping.

Upcoming Webinars, Online Opportunities, and Meetings:
The Childhood Cancer Data Initiative (CCDI) will host a webinar on the NCI-funded Pediatric Preclinical In Vivo Testing (PIVOT) program, featuring experts Malcolm A. Smith, M.D., Ph.D., and Carol J. Bult, Ph.D. on May 13 at 1:00 ET. Click here for more information and to register. 10th Annual Mark Hill Memorial Golf Outing on June 6th at White Hawk Country Club benefitting Northwest Indiana Cancer Kids Foundation on June 6 in Crown Point, IN. Click here for more information and to register. The Coalition Against Childhood Cancer will hold its 2025 Annual Summit, hosted by Children’s National Hospital in Washington DC and presented by Day One Biopharmaceuticals. This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing efforts of our members who are working for a future without childhood cancers. June 15-17. Register here: CAC2 Annual Summit Registration

MIB Agents FACTOR Osteosarcoma Conference brings together the leading osteosarcoma researchers, clinicians, patient families, osteosarcoma survivors, patients, and bereaved parents to Make it Better (MIB) for those battling this disease. The conference is is Salt Lake City, UT on June 26 – 28 2025. Click here for more information and to register.

Past Recordings:

CAC2’s April pop-up webinar, “Patient Advocacy, Non-Profit Foundations, and the Changing Landscape of Pediatric Cancer Funding” CAC2’s April webinar, “The Role of AI from Diagnosis to Treatment for Childhood Cancer”

Take Action:

The Hopper-Belmont Foundation (“HBF”) Inspiration Award aims to motivate young investigators to make a difference early in their careers by providing a $5000 personal award recognizing concepts and/or projects in one of the following areas:
  • Innovation: Recognition of an innovative idea in need of proof of concept/data prior to applying for larger grants from NIH or other funding resources
  • Aspiration: Providing resources to begin or to further research in a designated HBF focus area

CAC2 Innovation Council Recommendation: My Dragonfly Friend

The Requester: Marie Kriedman, author of the book My Dragonfly Friend

Overview of the Opportunity: “My Dragonfly Friend” is a resource for families of children with cancer that is being used in children’s hospitals.
The Type of Request: Information sharing about a book for purchase that supports children with cancer and other children in the child’s family and community. The Ask: Inform CAC2 Members about the book, My Dragonfly Friend that encourages children of all ages (in any stage of cancer treatment), and reminds them of their strength, bravery, and love surrounding them on their journey. When a child is in crisis, the entire family is affected, and the author would like to help children have a small bit of comfort during a stressful time. Supporting Documentation: From the author:

This high-quality children’s book offers educational information and resources. It tackles a tough subject, without talking down to the child, and inspires hope. Thoughtful and colorful illustrations compliment the book’s theme of strength and love. My Dragonfly Friend covers 10 cancers and various levels of treatment, from diagnosis to post treatment.

I always say that, “A small amount of help is a huge help when a person is feeling overwhelmed.” A cancer diagnosis for a child is clearly overwhelming, as well as a new and scary situation. I hope you will consider purchasing some books to have on hand for families and add it as a resource for anyone who needs help. 10% of all sales will be donated to the Dragonfly Foundation.

You can read a description of each of my books (and reviews) at BooksbyMarie.com.

Picture of Vickie Buenger

Vickie Buenger

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